Posted by geoff (64.51.8.130) on January 24, 2001 at 13:49:37:
Margi, Bravo for stepping to the plate. I was diagnosed at the Montifiore clinic on the Bronx with CH @28 yrs although I suffered from the time of 19 yrs. I found this site in 97? and frequently visit during a cycle...and RARELY come during off cycle...because I do not wish to be reminded of this burden I must live with. Its bad enough during a cycle...cluster headaches is something I HAVE its NOT WHO I AM. I have seen the pokes, ribs, and occasional nastiness, and I pity those who need to humiliate and put down others in an effort to feel superior in their pain...I NEVER contribute posts, but quietly absorb the RESOURCES here...and to me that is what it is..a RESOURCE...when I go to the library, I do not look at the others to see if they are "really reading" or just loooking at the pictures...the library is for everyone. I hate my condition, and feel its just something I have to live with..narrow minded pompus "my pain is worse than your pain" people I do not have to. Margi,all my respect and admiration.:)
And for what it is worth...I've learned more here than in any neurologist's office...I for one appreciate your kindness...and this planet is a better place for having you and yours on it:)