Posted by Linda B on March 10, 1999 at 14:13:20:
In Reply to: Diagnosing one`s self on CH posted by Linda B on March 08, 1999 at 14:04:10:
Well it seem`s like there is a few of us that have stepped forward and told the doc instead of the doc telling us. O`Yea I was digonosed from {not just HA`S] But that I needed glasses I need a dentist I needed a ear`s,nose an throt doc. I needed a chiropractor, I needed a mental help theropist cause it was all in my head "WELL DUH" to the last one I need a dermatologist. Still have`nt figured that last one out. O`Yea we have alot of nutty doctor`s out there. I wasted so much money I dont want to think about that.
Till one day I was reading in my "Mother`s Encyclopedia" and there it was Cluster Headache`s. Ok I knew what I had. Then I went to another doctor. Told this doc a little white lie. I told him " That 10 year`s ago my doctor in the city was treating me for CH." Well it worked my pain is not near as bad as it was.
About that book I read it in, my mother gave me this book when I had my first child over 14 year`s ago. She used it on us kid`s when we where growing up. This book is a mother`s bible. This was before every home had a computer or even new what a computer was. This book was published in 1959. Now tell me doctor`s have not studyed this in medical school. This is 1999. BIG gap in year`s dont you think? In 40 year`s you would have thought the would have researched this more than they have.
Well there`s my story in a nutshell.
I can see it now, one day, one or all of us is going to write are case study`s on CH. Then will get the notariate we should of had all along. There will be a movie made of "CH an waht it did to me an my family." Other`s will step forward with CH. Then come`s the part we have been waiting for the have the cure.
Maybe it`s just a dream. Maybe it`s not. Who`s to say.
Hug`s to you all. Hope your life one day will be PAIN FREE Linda B