Posted by Bob P (129.65.46.87) on December 08, 2000 at 10:18:08:
Since OUCH was first founded, Jack Boyd has echoed the phrase, "Do what helps the most people", or something like that.
The number 1 complaint seemed to be doctor's who were unfamiliar with CH. OUCH members came up with a brochure. At the convention it was suggested we get a short description of CH and it's treatment written by one of our doctors. We could share this with our personal physicians and they would be more likely to pay attention because it was written by a doctor. We have yet to complete this task. We have developed the CH Doctors web page to list doctors who are already familiar with CH. A partial accomplishment in this goal.
I think what I hear often now is insurance companies. Here we need some input. How does one get an insurance company to consider CH treatment as something different than migraine treatment? Do we take one HMO at a time and find out what their proceedures are, then mount a campaign to have them change their ways? How do we get them to consider CH a separate disease with it's own special treatment needs.
"Do the most good for most people."
lyg
Bob P