Posted by Barbara D. on March 02, 1999 at 22:37:41:
In Reply to: Re: Whole new problem for CH patients ? posted by Jackie on March 01, 1999 at 22:04:29:
I agree Jackie. I think WE'VE all been misdiagnosed a few times, so there will be some that aren't clusterheads, but I think there are a lot more of us than anyone knows. Gosh, I've seen so many come on this board lately. Yes a few were misdiagnosed, but WE DID HELP FLO AND RICH so what's bad about that. RICH would still be suffering if Michigan ... hadn't been mentioned.
The last note I had from Flo, Rich had gotten the RIGHT diagnosis - who knows if that would have happened if it hadn't been for the info on this board.
I think the MORE we get out the better educated docs will be and the less people who will end up suffering.
Of course, that's just my opinion. I could be wrong (not likely- I'm a mother -LOL)
Hugs BD