Posted by Bonnie (207.230.226.79) on November 07, 2000 at 14:35:01:
My husband Warren woke me up early this morning - he had come home early from his night shift with a bad CH. This is the first since his last cycle ended in April. We were expecting them back in September, and when it didn't happen, I got hopeful that maybe he would skip a cycle. Unfortunately it doesn't look that way. We have prescriptions to fill, but he has been holding off on them. We have one for Topomax that I have been reluctant to see him take, after some of the recent posts, but reading the ones just today, maybe it is worth giving a try. Also want to try oxygen this time, as well as DHE by injection, as that has worked great at the ER previously. I felt immediately sick to my stomach when I heard him come in the bedroom - and can only imagine how bad he must feel. What a terrible affliction this is. I found this site at the end of April last year, just as he was finishing a cycle and I check in almost daily, don't post too often as I don't usually feel I have a lot to add. But I feel that I know lots of you from reading your posts, and I do know everyone that we met at the convention. I am praying for PFDAN for everyone.