Posted by lc bob on February 27, 1999 at 00:14:36:
In Reply to: 48 Hours EMail Address! posted by DJ on February 26, 1999 at 18:48:28:
here's what i sent. feel free to plagerise.
lcb
48 Hours,
It is hard to imagine a more overdue story than the agony of being a
clusterheadache sufferrer. Until you have experienced the shame of a
public attack, the fear of living, the dread of sleeping, the physical and
psychological depression of seeing yourself through the terrified eyes of
your loved ones, the sheer exhaustion of fighting the unrelenting enemy
who assaults you nightly - preventing your rest and denying you the
ability and desire to fight, and the frustration of explaining to
disbelieving friends, employers, co-workers, and DOCTORS why you
feel a sense of momentary comfort by slamming your head into a wall
for the millisecond of distraction from the daily assaults ... until you
have even the slightest perception of these symptoms, you cannot
appreciate the depths of existence brought on by this debilitating
affliction.
How many of us are there? The extent of the problem is only now
becomming clear through the efforts of a fellow sufferrer who has
created a website in 1998 that has erupted with more facts about
cluster headache than have been produced by the combined efforts of
multinational drug empires, "concerned" medical professionals, and
"investigative" reporters who have perpetuated mythical beliefs about
the disease for over 40 years. These facts come from those most
qualified to address them: sufferrers themselves. These facts fly in the
face of "accepted wisdom" regarding the typical clusterhead. These
facts include the frightening number of people with the syndrome.
We invite you to read the facts. HTTP://WWW.CLUSTEHEADS.COM.
Then follow your conscience.
Hoping you consider us publishable,
BitBob@AOL.com (lc bob)