Posted by Pete C (24.189.21.160) on November 04, 2000 at 00:39:42:
So much information on this site, probably more in this site than I've found combined in most others. I'm glad I found it. I'll have to come back several times just to get through it all! I hope you don't mind if I even stick my 2 cents in once in a while on the message board. I'm already very intriqued by the Water,Water,Water approach that was written by Margi.
Didn't even realize there are this many ch folks around. A little about me...I'm a 34 yr. old male who was diagnosed with clusters about 9 years ago. I'm a chronic, as I never go more than a couple of weeks without one (usually 1-2 every other day), although I also go through some intense cycles a few times a year(usually 5-8 per day). I've tried to stay away from the drugs as much as possible, but have used verapamil & prednisone occasionally to break a bad "time". I've also tried internasal lidocaine, as well as feverfew and cayenne. Of course, I've also done the ice, cold water, hot water, deep breathing, cold air and head banging when necessary. Sorry if I'm dragging on, just excited to find a place with folks who understand "the demon". Usally when I talk about ch to someone I get a dumfounded look in return for trying to describe the pain. Fortunately, I've got a great wife who is incredibly supportive and takes better care of me than I do. Anyway enough of me already.
Thanks,
Pete