Posted by Paula (205.188.195.23) on October 02, 2000 at 23:49:28:
Our computer was broke since just after the convention till now. Didn't have the funds to fix you know. I hope you haven't forgot me. You all helped me so much. I thank you all from the bottom of my heart. The CH are gone!! About a month now. Still trying to get back into the swing of working after 3 or more months of one or two days a week. It's so good to read everyones messages and be a part of the site again. I recieved my tee shirts and wear them proudly!! They are true conversation pieces. I thank God I made it through this last cluster. It was a real mean and nasty one. The worst I ever had. And without some of you I never would have made it. You truly saved my life several times. The nuro had me on Topamax then added norvasc after a hospital stay. I went up to 400 mils of topamax and every time the doctor uped it my CH would get WORSE!! The kip would go from 8 to 10 and beyond. And I started to get them every one to two hours ALL day long. I said enough of this and he let me taper down. As I did so did the clusters. I am not touching Topamax with a ten foot pole again. Funny how it and other meds can work for some and not others. I am just so happy to be rid of them for now. I will continue to support everyone eles like they did me. Thanks again everyone. Sorry this is so long. I really missed you all. I hope your glad to have me back as much as I am to be here. Hope everyone sleeps well. Love Paula