Posted by Ted (205.188.193.158) on September 27, 2000 at 01:28:20:
In Reply to: closing thoughts posted by Paul on September 27, 2000 at 00:39:35:
Apparently I did think it was worthy or I would have flat out told you, like I've told many, that you don't have CH. I suggested you be allowed to be studied because certain cracks of the neck or movement has been reported here (and noticed by me) to bring on an attack. In your first post you made it very clear that you only got attacks by some movement. My thought was if you will only get them by a certain move of the arm, or position of the shoulder, you could do a lot of good by being studied because that would answer one piece of the puzzle for us. If you don't want to do that I don't understand what you mean by your wanting to help others because we both know that us posting to the board talking about what CHs are to us is nothing but self-therapy which allows us just to tell our story. It's not until we take action... joining OUCH, participating in any study we happen to find, that we are being active (I'd say "pro-active" but I hate redunancies)in fighting this. I suggest again participating in a study, or if you can't find one (not easy to find them for CH) telling your doctor and having him/her note and analyze your situation.