Posted by Ben on February 15, 1999 at 10:12:42:
JUST KIDDING! :)))
I've had these lovely demons for 10 years now, but have been in remission for 9 of them.
Never been diagnosed, mainly because my mother has CH and she knew I had the same.
I am going to the Neuro on Wed so I can possibly try and get some meds. I am taking the info here
with me to the appt and give it to him.
Has anyone tried the ergotamine? I don't see a lot of chatter about it.
I know I tried the oxygen when I was young, and it helped sometimes, but
never heard anything else helped until I found this site awhile ago.
I am up to 2 CH's a day, that last 90 min a peice now, so I am looking for any
alternative to the bullet in the brain treatment.
Thanx,
Ben