Posted by Penny on February 14, 1999 at 17:48:27:
I just read your new message.
I can't even begin to know how to thank you for starting this site for clusterheads. Before this I suffered alone. I, too, started searching for websites during my last episode. But I never had the vision to start something like this.
My husband asked me today when I started getting these things. I always left the bedroom when I got one because I knew my moving aroung (OK thrashing) would awaken the dead and someone in our household had to get some sleep. And I am like you; there is really no one to share with because they really have no clue what our pain is like no matter how good their intentions are! I also get migraines so I can say that.
And I, too, often sit and read the messages and feel those tears for those who aren't getting the help they need. The saddest thing is that many of us had no way of knowing if we were getting the help we need! You have opened our eyes to the fact that there is help out there if we know where to look and what to ask for. We are not whiners or complainers or neurotics.