Posted by Eva on June 05, 1998 at 20:29:45:
My husband has been in a cluster cycle for almost 2 months now. He is taken verelan and being weened off the prednisione. His peak of the cycle has pasted and at that time the only relief was 1ml injection of D.H.E. Now he is down to getting 1-2 every morning and the migranal nasal spray can help without the side effects of the injection. The problem is our insurance will not cover the med which is costing us $150.aweek and we cannot go on like this. There refusal is that they explained to us that they want to see peer review literature to support the higher then normal dose of 1pack which holds 4 sprays ,enough for 4 days for my husband. They feel that 1 pack should be enough for 1 month. I NEED TO EDUCATE THIS PEOPLE IN THE SUFFERING OF THE CLUSTER PATIENT.Our dr. will not take the time to do a review complaining he's to busy. Please if anyone can help with literature to help us i would appriecate it. We can not continue to pay the $150 a week and the insurance people only seem to think these are just migraines. ( just wish i could put them in the room with my husband during a cluster attack and them maybe they would feel different) . As much info on the drug and about clusters would help us to maybe win a 2nd appeal with these people that have there minds set in one frame about those people that suffer more then most will ever in there liftime. PLEASE!!!!!!