Posted by gary g on February 13, 1999 at 14:43:00:
In Reply to: Oxygen? gen posted by Jim Stamatis on February 12, 1999 at 18:56:37:
after 28 years of clusters, discovered high-flow oxygen thru this msg bd in Nov98
for me, a miracle !
doc tried me on o2 2o years ago, but lowflow, supplemental like they use for emphysema, etc
No effect at all on CH
got my doc to write a scrip for pure O2 by mask,8 liter flow rate (which is the max on the control valve I rented), breathed pure through a "one way" inhalation mask (little valves on it prevent sucking in air from the room)
WOW !
shuts the attacks off like a light switch in about 10 minutes
VERY IMPORTANT: start o2 at the very first "twinge" of an attack - a couple times I waited until there was noticeable pain, and no good -
didn't work
this DIDN'T stop my cluster - I went another 6 weeks before they stopped, but I was delighted to swap the horrible pain attacks for the "nuisance" of the oxygen setup -
TW - went on a 1000 mile trip during that time, rigged a tank behind the driver seat of my car, and hung the mask on the upper seatbelt fixture - every time an attack started - pu;led over, turned the tank on, put the mask on and "....on the road again..."
good luck !