Posted by viviane cedergren (195.252.56.28) on September 05, 2000 at 07:19:13:
In Reply to: Shame we seem to be the only ones thinking about this... posted by Geo on September 04, 2000 at 18:36:46:
Dear Geo
You're so right - very good resumé, there are so many facets and influences from many directions.
About research in order to find a cure, unfortunately my opinion is that the pharma industry might not be that interested in finding a cure for its best clients.
We consume masses of painkillers, the most expensive ones, too (I am up to about 20 Maxalt p.m.), so we contribute to a fantastic turnover for some of these companies. Find a cure, maybe a one-time treatment, or maybe for a fewmonths, and where will their income be??? They would just destroy their own business.
Furthermore, it seems like our lives are not threatened by CH. so it would not give them any great merit finding a cure for CH.
This may sound awful to you and other sufferers, but I am afraid that is how the pharma industry looks at it. Wish it could be different, too,
PF PF PF
Viviane