Posted by Brent on June 02, 1998 at 13:44:55:
In Reply to: Re: cluster headaches posted by FC on June 01, 1998 at 18:34:39:
I just got slammed out of AOL during mid response, I don't know if that will post.
I have done the Sansert for almost 4 months now. I have to take a "break" from it when the current RX is gone. There is controversy regarding liver damage with ergot derivative drugs. The Imitrex I still have an active RX for, but it is an as needed thing, not scheduled doses. Imitrex inhalers are VERY EXPENSIVE. If not for insurance I would not have been able to afford it (almost $17 per dose). I know the pain is horrible and I would gladly give a $20 bill to kill one of the monsters, but I could only go so many $20s per day without going bankrupt.
There are many theories as to causation; carcadian rhythms (sleep pattern changes), seasonal changes (ties into carcadian rhythms), consumables (tobacco, alcohol, nuts, cheeses, etc.), stress, physical exercise and on and on. No one is really certain.
Unfortunately there aren't enough of us to warrant major research effort or money. These things are kind of an underground disease (or affliction) that as you have discovered are not well known by the medical community.
I work in a moderately pressurized office environment, but have had episodes for 20 years and throiugh variuous work settings. I do have allergic rhinitis (air born allergies), but who knows if that adds to the problem.
I am in between episodes now so I am content. Next time I'll be more aware and much better armed.
Hey, get on the docs and make them learn if they don't know anything about cluster headaches. If information is accessible to you then it is more so to them. They have a responsibility to you.
Best wishes, keep in touch.