Posted by Barbara D. on February 05, 1999 at 11:55:48:
In Reply to: MD visit Discouraging posted by jen on February 05, 1999 at 01:28:49:
Jen, I've said this before, but here goes again. INTERVIEW the dr. It doesn't take long to figure out if they know anything about CH or not. ASK them how MANY CH patients they've treated and what their success rate was.
It's a shame, but CH are so rare (especially in women, although from this board you wouldn't know it - maybe that's a false myth also), but drs. JUST DON'T KNOW ABOUT THEM.
Keep looking until you find a Dr. who will LISTEN to you. You probably know more about CH than they do. We've all been through SEVERAL drs. before we find "the right one". Remember they are just "practicing" and don't know everything. Don't let them intimidate you at all.
Hang in there, there is someone out there and you'll find him/her. Hugs BD