Posted by Todd (64.34.202.197) on August 07, 2000 at 22:43:58:
In Reply to: Still determining - (sorry it is kind of long) posted by Shannon on August 07, 2000 at 17:16:21:
Hi Shannon-
Here's a point by point, to one person's experience.
The "tightness" and rubber band analogy aren't familiar. Neither is the 'wave of pain' (mine is a tsunami at the least). No vision problems here, other than the droopy, teary eye. Mine never stay at a 2-3, but soar to a 10 in a minute or two. They also don't fluctuate.
BUT- commonalities include never wanting to bang my head, though not because of the extant pain. For me, I think it's more a personality thing...when confronted with adversity, I draw into myself. Hence, I react with outwardly calm, while pacing continuously and repeating meaningless but repetative thoughts...like a song lyric or counting.
My first cycle (18 years ago) brought only one per day...around 7 pm in my case. Cycle 2 went to 2 and every cycle thereafter settled in at 3...until the last one. That was the first time I had 4/day and also the first time they woke me up (an experience I still don't relish).
So, to answer your questions, from MY singular perspective:
yes, they get more severe with time
no, we don't all have (or perhaps no-one has) the perfect 'classic ch' profile
on the plus side, just as my attacks have gotten worse with time, my remission periods have gotten longer.
Assuming you've had all the relevant tests (MRI, CT, etc) remember the words of Sir Arthur Conon Doyle:
"When we have eliminated all the impossibilities, whatever remains, no matter how improbable, must be true" (Okay, that's a paraphrase....it's too late and I'm too lazy to look up the exact quote...cut me some slack, Ave:-)
Stick around, continue to read, learn and share what you find with your doc. If you find something that works, even if it cures what turns out to be alien induced alpha wave irregularities in your particular case, we'll all rejoice.
And if anyone doesn't, I'll have jonny kill them. :)
KTSSU,
T