Posted by Terry L. Gordon (152.163.213.77) on May 26, 2000 at 00:26:15:
Hello fellow sufferers havent posted before but have to let everyone know my experiances . and please excuss the bad spelling . i recently had to change neuro dr because new insurance did not have my current one on list of providers .He has been my god for about 5 years of the 13 years i have had this headaches .But the new neuro which is head of the Iowa Head Pain Clinic in my town is now my goddess :>).First vist she sat with me for 1 1/2 hours talking .She wrote down everything i said and was very interested also in this site because i printed it all out for her.Now the drugs she gave me MARINOL which is synthetic pot to help try to break cycle 2.5 mg three times a day for 10 days it did nothing :>(.since i am only a seasonal sufferer spring and fall only and i get them mostly at nite between 11:30 pm -3:00 am she gave me these to try at 10:00 pm i take 2.5 mg of AMERGE ( a cerebral vasoconstrictor)then 1 hour before i want to go to sleep i take 300mg of LITHIUM and 1-3 pills 4mg of ZANAFLEX (skeletal muscle relaxant) . Ihave been taking these for a week and have not had or been awaken with a nasty cluster headache :>).I must be ready or in bed an hour after taking the last two because i go out like a light .I had a headache second nite but was too tired to get up and hit the o2 tank and fell right back to sleep a very deep sleep and headache didnt bother me at all.And i also take the nasual spray imatrex when get it in day which is rare.And if cant shake it during the day when at work i use Stadol which makes it hard for me to work but i stay there and muddle thur the day .I keep very busy at work during day and keep very busy at home after work because it seams like when i relax i get a cluster .Well i wrote too long but hope some of this info will help others and something you all can check into with your drs and such. So c-u i gone poof . Terry