Posted by Bennie Sue (63.16.4.222) on May 23, 2000 at 00:03:20:
In Reply to: husband suffers from clusters posted by penny on May 22, 2000 at 22:28:43:
As you may have gathered one of our primary objectives is making others aware of CH and how it affects our lives.
You can help the cause by keeping those doctors informed. Give them an OUCH brochure and printed material. Not only your husband but other clusterheads might benefit by your spreading the word about what works and what does not.
How many doctors do you know who actually treat CH effectively? We have an uncommon ailment that is not stressed in medical school. I do not blame the doctors; they cannot be up to date on every aspect of medicine. But the more who understand us, the better for all.
Maybe your husabnd would like to join the message board also.