Posted by David (205.188.199.176) on April 21, 2000 at 13:22:08:
I know you all have the same fears of going anywhere for fear of "getting one." Last night I was at a family dinner with thirty people and enjoyed one nice hour until the symptoms came and then I had to run to the car and scream and moan for two hours; it was all over and my wife drove me home before I could be functional enough to say goodbye and thanks. It was usual during a cycle. You know. It's been bad for about two weeks. My so-called neurologist has been insisting on getting me off my lithium ( the only thing that works for me) because he is afraid it may hurt my liver in the future. I take 300 mg. per day along with 25 of imipramine. I double the lithium during bad episodes. But he won't give me more prescriptions. I'm stuck. He doesn't understand there is no cure and I need something. The present for us is more important than the future. The blood test said I have no problems liver-wise, but he still insists. I am seeing another doctor next week. Does anyone know of a doctor in Cleveland, Oh. that understands our problem? My pains are as bad as ever and I've suffered for 15 years. Any help would be appreciated. Only my immediate family really understand - the rest of the family think I just have a bad headache. My family sees what I go thru. Thanks; it's nice to share with others who care.