Chronic Paraoxysmal Hemicrania


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Posted by ARTHUR (152.163.197.48) on April 20, 2000 at 18:32:57:

I am trying to locate people that have been diagnosed with a form of Cluster called Chronic Paroxysmal Hemicrania. Also called the ice pick headache. Pure hell and I've been with it for 25 years. I feel alone in this, have tried clinics, alternative meds, dozens of therapies and the only thing that works is Indocin. Which has created Colitis. Indocin is one of those nasty NSAIDS. I need input of where to go from here and would appreciate anything anybody can share.


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