Posted by boernie on December 22, 1998 at 01:49:48:
In Reply to: How do I get her to understand the pain I experience posted by Mike on December 21, 1998 at 22:20:36:
hi mike!
i know, it doesn't help u - but I know this situation. I think I have one of the very best friends in my wife - but after three years of seeing me suffer, she hasn't the power to awake every night, when I switch on my O2-tank. she can't understand, why I'm tired after an attack at 07:00 pm -. we very often diskussed in the evening with friends, drinking a fine glass of wine - now I drink a fine glass of fruit juice and have to go to bed at 10 pm, because I know, at 01:30 am the next ch starts - she is also afraid of the vacation, knowing that I would more like to stay at home - u kow all these things ...
but the very most terrible is, to have the certainy, there's no cure available at this time.
but I am a fighter and I don't stop to talk with peoples, doctors, friends and try everything to find relief - and at any point I say to me: I never give up! I and u and all of us sufferers - we beat this monster!!
wish u a painfree time - merry christmas and a happy new year
boernie