Posted by Nevyn (207.66.20.32) on March 27, 2000 at 07:44:38:
The IANA has been distributed to over 100 people suffering from CH. I have no idea as to how useful it has or has not been, but it was a start in investigating the CH problem. I believe it is now time to go a little further and develop a central site where people can record their cluster history and also use the site to monitor the cluster event. The IANA score can then be compared to the base line score of others suffering the same problem. The result would be correlation studies which compare the IANA score to specific groups (male, female, age, medical history etc.). This is an extremely large project and would require a lot of donated volunteer time. What I need up front are some programmers familiar with Microsoft Active X (IIS type application) who are willing to dive in and help set up an interactive web site. I want to maintain the use of VB rather than shift to JAVA or Pearl because it is in wide use and can be altered easily. Also IIS is totally a server side application and that is extremely important. If you want to help, and that means really dive into this, then contact me at nevyncampanella@gilanet.com. My plan for now is to use ICQ for ongoing contact. My ICQ number is: 64816327.