Posted by Linda on November 25, 1998 at 19:38:32:
In Reply to: Re: Can we do more? posted by Don on November 25, 1998 at 14:48:19:
Hi Holly,
Sorry you had to join us. But happy you found this board. It has been a lifesaver for me. It has helped me learn about new medication`s and treatment`s that or out there. This was a big help in find the right combanation in stopping my CH cold.You also need a doctor with a very open mind. I was going on over 20 year`s chronic CH. Even though it`s only been 7 day`s for me. 7 is better than none. I do believe it`s find the right combanation for me it is Verapamil 240mg, Evail 50 mg and Esgic-Plus 4 capsaule`s a day. In my case I`ll be on it till dosent work anymore. Then it will be back to the drawing board. PLEASE never feel like your helpless. My family is my support system. I can understand how you feel. My hubby is in a wheelchair alot of the time he get`s very bad spazam`s This make`s me feel so helpless I`ll I can do is rub, try heat cold anything to try to help. So I can understand where all you spouse`s or coming from when you say you feeel helpless. I also can say as a CH suffer we can make you feel helpless when where in pain and or at the bottom of or living hell. Alot of say and do thing we would never do. Nor do we mean half of it. I think that steam`s from or own helplessness. It come`s out in many forms the demon we with hold inside. I dont know if I answered any of your question`s But I hope I was able to help. If you need someone PLEASE feel free to e-mail me. Margi and Barbara or both in the same boat as you and they or very plesent to talk to. And or very understanding lady`s.
Good-Luck to you Holly Hug`s to ya I know we all could use one:-) Linda