Posted by Bernadette (204.115.229.51) on March 02, 2000 at 10:13:42:
In Reply to: OUCH membership card posted by Phil on March 02, 2000 at 09:18:07:
When my clusters started I felt alone and scared. I looked all over the net trying to find any information that I could about clusters. I did find some information but the pickings were slim to none. I felt so all alone with no one who understood but then one day in April of 1998 I found this site. I truly believe that this was my message from God answering my crys of help. For so long I was alone but then I found others out there who understood my pain..........I had finally found my home. A place where people understand what horrible feelings I have when this pain attacks. People who understand the frustrations of dealing with CH on a day to day basis. People who understand that if you don't want to be bothered on that day.....well they leave you alone while at the same time not taking any hard feelings towards you because they also understand what you are going through at that moment. People who give you joy and laughter when the bad times get worse or rejoyce with you when you have better times. There are always differences no matter where you go in this world but it is a wonderful thing when you can find others who share your differences with others who know. I find this site to be a blessing, an answer from God. You see I know that at one point or another we all prayed and asked God to take away the pain or asked God to take our life but he knew better. You see I look at this site as a way for us all to express how we feel about what we are going through so in some ways it eases our physical pain bringing us a warm feeling of kindness to our hearts. I think that is we didn't have this site, where would we turn, where would we go, who would help us so this I feel is truly a blessing to all those prayers we prayed so very late in the evening or early in the morning.
I'm glad you feel this way, God Bless you.
Bernie