Posted by Amy (207.69.16.156) on January 31, 2000 at 17:13:04:
In Reply to: belated intro posted by Karine on January 31, 2000 at 09:48:03:
As I was reading Karine's post I realized that I had forgoten to to properly introduce myself before my first post. So here it goes:
I'm a 22yr old female my first CH was when I was 12yrs in which I was diagnosed as a sinus infection. When I was 15yrs I was finally diagnosed with migraines but every medicine my doc tried never worked(beta blockers, indicine, 800mg ibprofane, heart medicine inconjuction with bloodpressure medicine, ect). The more I read about migraines the less sense I could make about my headaches...some things were similar but nothing "fit". I gave up on the medical profession & just dealt with the pain. Finally 2yrs ago, my first semester of college, I was fed up I decided I couldn't keep going like this because I had responsibilities. I went back to a doctor & was told about clusters for the first time. He told me that he had them & knew exactly what I was talking about. After 8yrs of not knowing & now I finally knew the name of the hell that lives inside my head. I actually cried in the doctor's office. I grew up thinking that I must be stressing myself out or I must be eating something wrong but it never made sense because I never could understand why they just went away & then one day I'd be on top of the world & the next min I'd be on the floor crying & kicking while begging for anything to make the pain in me leave.
A few days ago I came across a web site about clusters & wrote an email to the creator. He suggested this site. I read a few posts & decided that this was an ok place with good people. I guess I'm here for the same reason alot of you all are. To find something that the journal of medicine can't provide- how to cope on a daily basis- to trade/pick up a homade secret that just might work- to share knowledge in hope that along the way we might just maybe understand- to know that when round 1 knocks you out & lonliness sets in there is someone else who knows. Atleast for me that's what this board represents. So hello to you all & I hope I can be as benificial to you all as you have already been for me.