Posted by Margi on October 30, 1998 at 15:18:53:
My husband has been suffering from CH for 20 years and we have yet to find a doctor that will treat him for it. He has been treated for sinusitis (penicillin), migraines (imitrex - quickly built up immunity), and pain relief (toradol, ferrinol, etc.). I have tried treating him with feverfew (which lessened the severity but didn't avert the attacks and you have to take it for a long time before you see results).
Right now, because of this site we are trying the water therapy and inhaling pure oxygen (that we have with our welding supply but can't seem to find a doctor who will prescribe it!). He is getting some relief (his first sleep in over a week!) - thanks, Jerry! He has been on a waiting list to see a neuro at the end of November, but I doubt he will still be in this cycle by then so he probably won't want to attend only to be sent for more cat scans, bloodwork, etc., etc. He is on a waiting list for the headache clinic at the Foothills Hospital. Oh yes, that waiting list is ONE YEAR LONG!!!
I guess we'll keep doing what we're doing, but it would sure help if anyone knew of a doctor in the Calgary, Alberta Canada area that believes in Clusters and won't put him through any more "lab rat" testing.
Any help would be greatly appreciated.
My heart goes out to all you CHers and your support people.
Thanks for listening.