Posted by Jackie on October 05, 1998 at 10:37:32:
In Reply to: Just found out would like to know more!! posted by Robin on October 04, 1998 at 22:13:21:
Robin:
I'm a female who's been dealing with clusters
for 35 years. I'm so sorry you're having to go
through this.
Here's what I suggest. Find a neurologist who's
very familiar with clusters. Get a complete
workup, including diagnostic tests like a CAT
scan or MRI, to make sure there's nothing organically
wrong. Then read all the info on this website
related to clusters, so you understand this illness.
Make sure you read all about the possible drugs
you can take, both as preventives and abortives.
I know the feeling of being afraid of going to sleep.
That's pretty common among us cluster sufferers.
If indeed you do have clusters, time will tell
what your "pattern" is. I get mine for 1 month
every 2 years. I use the word "shadows" to mean
either a feeling of "fullness" in my head, with
the sense that a cluster is lurking not far behind,
or an actual mild cluster that never gets full blown.
The feeling you get that your heart is racing
could be anxiety. I'm only guessing.
Take care,
Jackie