Posted by John Bown (216.85.128.92) on October 28, 1999 at 08:44:46:
In Reply to: Ok my turn now John ......... posted by Claudette on October 27, 1999 at 22:08:49:
Hi, Claudette,
Here is the thing I don't understand. If there was something I could find about my CH that didn't fit, I would run it to ground. I want desperately to find out that what I have is NOT cluster headaches. Please, oh please let it be something ELSE. But NO. I seem to have primary chronic cluster headaches. I wish I had something more treatable. I wish I could find some little thing I could take to the doc and he would say "Viola! We've been wrong! You have a brain tumor. Be here next Thursday and we will cut it out!" I don't understand when people appear to accept a diagnosis of CH without fighting it with everything they've got until there is no choice but to accept it. If alcohol didn't trigger a cluster with 100% repeatability during my cycle (my current cycle began January 10, 1989) I would insist this is proof I don't have clusters and make the doc's start again and look for something else.