Posted by Mark W. (203.19.125.23) on October 20, 1999 at 08:13:58:
In Reply to: Re: Cluster Headache Genetics posted by Barbara D. on January 25, 1999 at 21:30:22:
Barbara D.
Am I ever glad to hear you say that neuros don't understand this problem, I have suffered AND DO I MEAN SUFFER, from these headaches for ten years, when I explain to doctors what is going on here in Aust. they honestly look at me as if I've got 7 heads or as if I just exposed myself and shouted the lords prayer. They say I'm imagining what I describe, and back comes that same old chestnut, "Umm.. just migraine, just stress, take some stupid tablet that doesn't work, & lay down." I mean these guys just can't believe that anything can NOT be migraine. I just chanced on the fact that the EXACT description of what I am suffering from was on the internet. I can't believe it I spend thousands of dollars seeing the so called best doctors neuros in Australia, and they do not know what cluster headache is, and yet its free on the net. Now I need to know what to do about it, but God do I feel better already just knowing that I am not the only one in the world with this problem, maybe the only one silly enough to see the dumb neuros in Syney, but not the only one in the world. If you know a cure or any relief please send the message.
Kind Regards,
Mark W.