Posted by jennifer on May 03, 1998 at 23:51:19:
In Reply to: Help!!! Husband is going crazy with clusters!!!!!!!! posted by Eva on May 03, 1998 at 21:40:19:
Eva,
I have been with "JSW" for the length of his most
severe clusters and would like to repeat what he
stated in his message: If the medication your
husband is taking seems to be doing more harm
than good, call your doctor. If your doctor does
not listen to your concerns or is not willing to
try new medications, find another one. One of the
most difficult lessons I have learned from this
experience is that doctors do not know
everything. Even the best doctor may not be
able to help your husband with his clusters.
Medication does not cure all.
Being the partner of a cluster sufferer,(or, I
imagine,anyone who suffers from chronic pain)is not
easy. There have been many times that I have
been, literally, on my knees, crying, praying
for my partner to be cluster-free.It hasn't worked.
Tonight, as I was rushing to the pharmacy to get
more imitrex shots, helping administer the shot, and
getting tissue with alcohol to place on the spot where
the needle was, I made a comment about the fact that I
couldn't even cry anymore.I have accepted these
horrible episodes. I am the "physician's assistant"
and it's actually a relief to have accepted these
headaches vs. feeling out of control and helpless.
That doesn't mean I have given up. I haven't. I continue to
look for help. I want my partner back. Clusters suck
for both of us. They have been a big emotional, physical
trip from hell.
I guess I just want to say, hang in there, don't second guess
yourself, seek help if you think your husband is
going to hurt you in any way, and keep posting here.
It feels a little better to know that there are
other people who suffer from clusters, even though
you wouldn't wish them on anyone.
Please read about Diflucan.
If you would like to contact me via e-mail just
let me know.
Jennifer