Posted by ErinBear (216.192.42.40) on September 20, 1999 at 22:03:22:
Hello Everyone - I am so thankful to have found this site. After nearly three months of daily severe headaches, focused in and around my left eye, I was diagnosed with cluster headaches a week ago. I also, unfortunately, have bilateral trigeminal neuralgia. The combination of the two is horrendous! In this site, I read of a syndrome involving these two conditions (cluster-tic syndrome) and I'm wondering if anybody here has experienced this combination of disorders.
I hope we'll be able to do something about the cluster headaches. I'm currently on 240 mg of verapamil each day. It seems to be reducing the severity of the headaches but they sure haven't gone away. It's troubling!
Thanks for listening, and I'd be most grateful to hear from anybody who knows about cluster-tic syndrome, or who has suggestions on where to find further details on it.
Take care everybody. Thanks, ErinBear