Posted by A Dame (152.163.207.82) on September 15, 1999 at 11:41:44:
Hi all:
Haven't been posting of late...Did good after my 2 surgical proceedures...CH stopped after being put to sleep....Don't know if end of cycle or surgery...Don't really care as long as they were gone..Rough time right after surgery..adhesions were much worse than any of us could imagine...Effected all organs in abdomical cavity...then gallbladder was removed...No side effects there, just very sore and tired all the time...no enegry...Played 9 holes of golf 9 days post op...got no distance as before yet, but very straight...16 days post op played 36 holes in one day...my distance is wonderful...now drive the ball further than I ever did before and straight...If I just didn't 3 put on some holes...can't seem to get it all working same golf game...My friend wants the doc to undo whatever he did because he says I am hitting the ball too far and too straight...
Now the bad part...I went back to Neuro Monday this week for follow-up visit..I was doing so good I thought..He was going to double the Verapamil from 180 mg to 360mg..however, since I was going so good and no headaches he decided to let well enough alone and just call him as I need him...Well, that was all well and good until he checked my BP...was way too high 159/95 pulse 124...he rechecked it before I left...Some may remember that I was taking 200 mcg of Synthroid for the thyroid and when they rechecked my lab...my PCP doc called that night and said my thyroid was out of sight and we had to get it down...She changed my Synthroid to .15 mg at that time..I didn't even take it for 1 month to get it out of my system some...that was all prior to surgery...the Neuro said yesterday that none of the meds I am taking would cause my BP or Pulse to be elivated.....but very concerned..wants my PCP to recheck lab work that I may still be over medicated on thyroid meds...Does anyone know if thyroid med will cause my BP to rise or Pulse to rise? Maybe Doc Greg will read this and let me know...my normal BP is 100/80, pulse 88 to 94...This morning when I got up it was 159/106 pulse 117....Took it again 1 hour later 142/94, pulse 112...
Well, when I was in the Neuro's office Monday, everything seemed fine, except for that issue...I felt fine and all...completed my day uneventful....Got home ate a couple of pears, read mail, returned phone calls, and got slammed at 8:05 with the worst I can imagine....In 20 minutes it went from 0 - 10....I took 2 Midrin, but threw them up (due to pain..) gropping in dark..like of any kind is a killer...got on oxygen two different times, did not even take edge off this time...Laying in bathroom floor in dark...I was thinking Susan, you are going to stroke out this time and die....I was alone...my son is in Atlanta...I was in shear panic...try not to panic only makes the CH worse,,,but don't know how not to...After I was able to get up...tried to get ice pack out of freezer it was stuck to some meat...frustrated and didn't have time to fool with it either...cold rag only resource...I took the Imitrex Injection...and 2 Mepergan Fortis...got on o2 again...waitng for the awful feeling that the Imitrex brings....much worse this time...really now thinking I am going to die and alone too...My mom called while I was on the bathroom floor...just picked up the phone in there to stop the ringging, but put it back down..after a while I dialed the *69 to see who had called and I called her back pressing the numbers on key pad in dark...takes several tries until you find the right keys...she begged me to get someone over here with me...I really can't worry with getting someone here...don't want to bother anyone...what can they do except see me act like an idiot...rock...cry, scream...in shear panic saying I am going to die...who wants anyone to see them like that...She called my brother anyway and by 10:30 I knew I was going to live...It kept peaking on me until I thought each one would be the last...I bet my BP was well over 200 at that point...no doubt..I bought a new machine and will keep it monitored from now on...
Waiting on doc to call....thought I was done with the Demon for a while...still carried the Imitrex Injection Kit in my purse like a security blanket I guess....
We are leaving for Cincinnatti...for convention late tonight...My boss' brother is going to fly us in his plane...I am in a panic situation...what if I have an attack while in flight....How embarrasing ......I don't want anyone to see me like that...I guess I would just die...then also being that high in altitude...what a mess...I had a very important business meeting last night...I had to drink tea....too afraid to drink any kind of alchol...not on your life...
Thanks for just listening....I would have posted while the attack was going on....but as I have said before..I just for the life of me don't understand how you guys post and look at that bright screen while you are in a headache...All I can think of is trying to relax, untighen my jaw...unclinch my fists...anything to relax....Not even the Mepergan helped me...2 of them....My family is very upset because I don't call them, but you people understand why we don't want anyone to even look at us,,,let alone talk to us or touch us during this state of insanity.....and that is just what it is insanity...I am so scared right now...don't know what to do....
Big trips planned between today and middle of October...Worry isn't helping anything I know...I was laying there the other night trying to conjure up something in my mind to relax me and get my mind off the CH...laying on the beach at Sanibel Island and the sun comes from behind the clouds and starts at your feet and the warm feeling that goes over your body as the sun rises up to your head...that was my thought...Thanks to Sanibel for the memories...
Thanks to all of you...I know this is long...but, hey, just don't read it if you see my name tagged on a message....Thanks to all that E-mail me...I really appreciate it...
Keep me in your prayers...I really don't think I can take many more headaches as bad as I had Monday...Mine usually are already at a 10 when I wake up,,,I am nocturnal between 2 - 5 a.m. is my normal time...This was at 8:05 with me fully awake....when, when will it end...Don't be surprised to hear I have died, because I really don't think I will live long....I can't take this pain...with no warning.....too much.
Love to all...
Doc Greg or anyone else...if you have answers to high BP and tachycardia problems....related to Synthroid, please, please let me know....the Neuro had asked me if I put it on the net and asked if there was a connection to synthroid or thyroid problems and CH as a trigger.....I should have heeded the warning sign in his office that day with high BP and pulse, that I was fixing to get slammed.....
A Dame