Posted by Shellie (205.188.192.154) on August 28, 1999 at 10:30:26:
Well, There was a post-it note on his desk with my name on it! He told me he had been contacted from a Dr. in Ca. that had been following my progress..??? FROM CH.com!!!! This Dr. pretty basically, but respectfully told him to quit being a "sissy" in our treatment plan and to get on the ball! Now, I went in there loaded down with posts from here and Goadsby's report...everything I could to draw him a clear picture! People, Dr.'s included DO NOT understand CH's! My Doc promised me he was gona visit CH.com and let me know his impression, and might even get involved here! Now, I must add, in all the years I've been with my Doc, he's always went way out of his way for me! He just simply "didnt know"! But he does now..and its so good to know that this site was the jump-start!! I didnt get the new med's we wanted, but there was another step towards awareness, and for that I am truly grateful!! I'm not giving up, and I know now that my Dr. isnt either!! Maybe, just once and for all, the aknowledgment was worth all the bottles of O2 I've never had!!:)
Be well everyone~
Shellie