Posted by Anne (208.171.21.125) on August 18, 1999 at 15:48:02:
In Reply to: FINAL POST!!! posted by Carl D on August 18, 1999 at 02:12:06:
Now, I am one of those episodic sufferers Carl mentions. And I will freely admit that I do not know the level of pain he suffers. I do know that I have thought that I don't know how I would get through life if I ever become chronic. I feel so awful during my cluster episodes but I get myself through by thinking about how in a few weeks time, the clusters will be over for another year or two.
Chronic pain of any kind threatens our will to live. Look at Jack Kevorkian and how many of his patients suffered from chronic pain...Kurt Cobain reportedly had chronic stomach pain in addition to any psychic pain he had.
I have been reading this board almost since it's inception for the same reason the rest of you do...there is no one else to talk to. I have been on vacation, busy with work and yes, had a modem get zapped by a storm so have not been following lately. I haven't had time to go back and see where this animosity is coming from. But I really feel that this place was started so people could freely express themselves. We do need to vent and I guess we all do it differently. And, yes, if I've found a person's postings offensive, I don't usually read them; that's how I control this forum to meet my needs. Many people have posted in anger in this website and just maybe they needed to vent. This is not about choosing sides, as I see it! I might find Carl's posts too negative and angry for my taste but what do I really know about what he is going through and what his needs are? I have no basis to give out advice on how to cope with CHs except to relate what has worked for me...