Posted by Geneva Slagg (208.235.165.26) on August 16, 1999 at 19:33:26:
Hi, didn't know about the message board, have been using the guest book. Anyway does anybody have this pain 24 hrs a day??? It just sits there and I'm ok at times but then it gets worse to the point of making me on edge, THEN it grows to the full blown pain!! I have had the 24hr head pain for at least 4 years! My first primary care doc just said it was migraines and diagnosed me with "chronic migraine syndrome". Gave me Esgic Plus pills. I went to him each month for lab work because of my thyroid. After 2 months I told him that these just weren't like my migraines that I get that they were different. Well he then diagnoised me as having "chronic vascular syndrome". I finally got feed up and "requested" a referral to a neurologist. I won't go into all that went on since then. BUT I did change my primary care doc :-) I am now seeing a pain doc and am receiving nerve blocks into the greater occipital nerve. I have searched the net and finally found info on that nerve and believe it or not that nerve can trigger migraines AND clusters!!!! I had my last shot on th 12th of Aug. It has relieved the pain from the nerve but I still have that pain over my eye and into my eye and behind my eye etc., etc., etc!!! Anybody who has this 24 hr pain PLEASE contact me. THANKS all!!