Posted by Judi Mosley (207.175.140.73) on August 10, 1999 at 22:10:21:
I found y'all 48 hours ago, and just want to take this opportunity to thank every single one of you, for being there, taking the time to reply, and all the rest that goes with it. For finding you, I was blessed with the worst headache that I have had in 10 years last night. What gives? Anyway, while I lay there
writhing, just being able to say "Kip, Michelle, Dave" over and over helped (there were others, but your'e too numerous to mention!!). As you know I'm new to this site, and I'm still finding my way around it, so I apologise now, if I am not doing the right thing yet, by replying to individuals, and clogging up the message board. Bear with me......I"ll get it soon!!
I just want to address a few categories, and am going to lump them all together to cover everyone.
DOCTORS: Like everyting else, there are good, bad, and useless. Don't necessarily go to a neurolgist - try an internist or GP. Never let them intimidate you - try some gentle intimidation of them...IE "6 years ago, I saw a top Neurosurgeon in Switzerland, and he diagnosed me with cluster headaches. He gave me Imitrex and it works....this is what I take when I get a bout of them, can you give me a prescription please, and I'll be on my way". Lie big if you have to, if it gets you the meds. who cares? WOMEN: The one advantage we have over the men is that menopause will probably be our cure. I have actually talked recently with a Dr about going into early menopause (I'm 44) to see if it works. It's likely that it will....so theres hope. As for the guys I spoke with a Neurosurgeon in Hawaii, who said that an operation can be performed that sever some nerves in the head. This is for the worst of the worst out there, but hey its something. If someone had told me a little green man on Jupiter fixed CH, I would have been there. Something odd is going on with my computer , so I am going to send this and see if it takes, and then I just want to come back and tell you a story that should make you all smile... Thanks a million....Judi