Posted by Heather (209.86.52.243) on August 08, 1999 at 14:13:33:
In Reply to: DJ's Supporter Message posted by RB on August 08, 1999 at 13:10:41:
My mom (Elaine) has always known how much it hurts us and how helpless we felt. Mom never let us know she was in pain when they were level 6 and under on the kip scale. She could not hide the pain when the pain was above a 6 she never liked for us to see her, she hides in her computer room.
Still does. Mom will always say she is sorry. Sorry for something she can not help. Being a supporter is hard thats so true but the ones in pain still have it harder, they have to worry about the pain plus what its doing to everyone else around them, I don't think I could deal with the pain let alone the other things that go along with CH. The drugs and all the problem you all have to deal with. If I had pain everyday as mom does I don't think I could do it. I would give up for sure. You people with CH are fighters and from all the Clusterheads I have met they are all wonderful people with mighty big hearts.
I am happy that the trip mom and I took helped you all see our pain too. But Please don't worry about us supporters just take care of your pain and know we are with you all the way, and that we always have a ear. Just tell us what you need.