Posted by gary g (208.133.221.215) on July 26, 1999 at 12:51:06:
In Reply to: Re: Choose your job carefully posted by Marina Rennicks on July 26, 1999 at 12:10:00:
you're gonna hate this, but I mean it in a way that can hopefully help, IF you approach it with an open mind
1. If you customarily work 14 hours/day, you don't want that job anyway - as my kids say "that's nuts"
2. The suggestion about finding a way to live with it is ABSOLUTELY on the button - - life is a damn sight more than a "star" job
3. A great many of us end up self-employed because CH simply doesn't work out in the "normal" workplace routine OR the standard model benefit considerations that have been set up - hopefully this will change, either with benefit improvement or treatment improvement, but right now it ain't so
4. if you are indeed a "star" when you are functioning, then it shouldn't be a problem to put your talents & energy to work in a way that allows you a "life" w/CH
5. no person is indispensable to any job, and no specific job is indispensable to any person
6. A famous theologian, Reinhold Niebuhr wrote a long prayer in the 1920s, a portion of which is commonly known as the "Serenity Prayer" (NO it is NOT an original w/the 12 step programs - it had been published many times before they were invented) Anyway - it can be of tremendous help in situations like ours:
God, grant me the Serenity to accept the things I cannot change,
The Courage to change the things I can,
And the Wisdom to know the difference.
who am I to talk ?
I've had these @#$%^&*( headaches for just short of 30 years, and am here to tell you that you CAN have a really great life in spite of them -
beyond that, I won't waste any more of the board's time on this - feel free to email me for extended discussion if you think it might help
BTW -
the concussion you mentioned -
MOST of the literature says no relation
Many CH patients say they have had no known head injury
Many patients believe something traumatic Did start them in their case
Not sure it matters, and believe the new research coming along suggests that trauma may be at best a trigger, not a cause
hope SOMETHING here helped, really