Posted by glenn (63.73.125.26) on July 13, 1999 at 11:04:56:
In Reply to: Still alive...............but barely! posted by Bernadette on July 12, 1999 at 23:17:33:
Bernie it was good to see you back, as yes we were all praying for you. When my wife went through the spinal taps, she had the same stuff. They stuck and stuck, and stuck, and didn't get anything. Then, we found a good ER doctor who sent us to radiology for a Flouroscopy Spinal Tap. With this, they use the xray to see where the needle is, and when it's hitting the right spot. They got the fluid on the first try. Bring this up to the quacks and see if they can do this. When my wife had hers, they said they were looking for infection also, which would signify Spinal Meningitis. Trust me, the pain from meningitis is entirely different from CH's. It is severe also, but hits mostly in the neck and shoulders. The headaches from it are nothing compared to Ch's.
Hope this helps you a little. Email me if you need more info.