Posted by Barb (207.228.9.204) on June 29, 1999 at 03:39:39:
In Reply to: Depressed but hanging in there. posted by Richard E. DeFord on June 28, 1999 at 19:29:26:
Hi Richard, welcome to the best forum ever, with people that really understand where you are comming from. this is my first year with them i am 33 and i have had up to eight in one day with hardly any breaks I hate when i am in a store and i start one and people ask me what is wrong with my left eye it is so hard to explain to people where i am comming from.
I first started them in feb. I went to the emergency room. my left eye was all droopy and swollen and i had such an intence burning in the back of my left side of my head i could not see srtaight. the stupid doc told me i had shingles.i went there cause it was on a weekend she said i would break out in a rash anyday. I never broke out in any rash , I went to my regular doc on that following monday. he said there was no way that I had shingles and diagnoised me with cluster headaches
he gave me some pain meds and set me up with a neuro two days later and i have had the best care with a doc that is really experienced with this I had never heard of cluster headaches at least he sits there and listens to me even checks my left eye finally they went away after alot of pain and praying that something will work for me it was my worst nightmare. but they only dissapeared for a month (I had them for three months straight) now they are back again and the doc is trying new meds on me I hope they work !! now I havnt slept in two days and i am writing this the meds he has got me on have caffiene in them and with the headaches i cant sleep anyways .so i try to keep myself busy instead of pounding my head up against a wall it is hard not to do that though and my family has been wonderful. I do get grouchy and snap at the kids and be moody with the hubby they just tell me they love me and same as you hang in there !! so there is hope !!
just felt like i ought to write to you and tell you since i have been comming to this forum (one day i decided to look up clusterheadaches) and this is the first place that i have landed and i have learned alot and the people here are wonderful and full of information. and they treat you like family I always say everything will work out please keep the faith... hang in there sorry if this is long but i got on a roll he he he smile for the world and especially for yourself :) take care hope i didnt bore you :)
pain free to all zeros Barb