Posted by Linda B on May 20, 1999 at 14:46:41:
In Reply to: Hello...My Story posted by Sarah O. on May 20, 1999 at 09:44:43:
Sarah,
O`My god what a nightmare. First these doctor`s that have been treating you like they are Nazi`s. Run sweetie run. Dont look back. Find yourself a good Nero.
I`ve had CH for 25 year`s. Beleive me thay put me through everthing and anything they could think of just to say they could find nothing. Last year I started doing research myself. Went to a doctor told him I had CH. Granted I did lie. at Told him I was treated for it many many year`s ago. Told him my symptom`s and he agreed that I had CH. For the last 9 month`s I have been CH free. Still get shadow`s, but nothing like I had. It`s really sad I had to lie to get help. It worked that`s all that matter`s.
It did take us a month to get the right combonation`s of med`s that work for me.
The point is you can do the same. Like I said find a nero or a doc you can trust. Tell them the hell you have gone through. If they want`s to do more test. I`d run out of that office and keep looking for another doc. Once you find the right one it will be all worth it.
I`ve walked out of alot of doctor`s office`s I also refused to pay. I just got to the point where I wasnt going to take it any longer.
Good-Luck Sarah Dont you let them treat
you like a science experment anymore.
Hug`s Linda