Posted by David Chalfant on May 03, 1999 at 15:00:35:
Hi everyone,
I apologize for blasting everyone I responded to and to the group in general. I am a CH sufferer and also a recovering alcoholic and I take things too personally. As someone( Gus I think ) pointed out, I should have identified myself as A CHer. I understand that people probably come to this message board and ask stupid questions including myself.I thought I knew a great deal about cluster headaches, but that is not the case. So I thank you for humbling me. I am not a researcher, but I am fasinated by this disorder. I suppose I should stay out of areas that I am where I lack credentials. I agree that neurologist should find the cause and cure of clusters, and I have been through the arena of all the misdiagnosis of many Doctors, dentist, GP's, untill I found a book on headaches. Getting a referal to a neurologist took a long time and getting a perscription for oxygen seemed to be almost impossible until I went to the ER and raised hell;fortunately a young intern said he would do whatever I demanded. Well, after 15 years of misdiagnosis. I am getting the correct treatment today, but I am baffled that physicians are so ignorant. Maybe because Physicians have become more specialized in health care is apossible reason for their ignorance. Yes, we do need to search for the cause and cure. Hopefully. more awareness willcome to docs and the public. But it really sucks that this may take some time and we will have to be patient and accept this "curse' we all have.
Sincerely, David
Mabey because CH's are rare disorders