Posted by Jim Ambrose on May 01, 1999 at 07:45:47:
I want to know if this happens to anyone else.
Background: 45 year old male, clusters since 1977 diagnosed as chronic 15 years ago but seems more eposodic in recent years. Drugs ineffective (except DHE45 iv 3Xday for 3days) Oxygen works like magic.
Physicial evidence: This happens when I exercise hard, particularly running or other cardio vascular exercise. My face is becomes divided by a perfectly straight line from the hairline on my forehead down the bridge of my nose to halfway between my chin and adams apple. It is like a ruler was used it is so perfectly straight. The cluster side of my face is ghost white while the non cluster side is flushed as you would expect after exercise.
During a cluster cycle this effect is easy to produce and quite dramitic. When I am not in a cycle (I once went almost 2 years without them) the effect is harder to produce and isn't as dramitic, the cluster side isn't as ghost white and it takes very hard exercise to produce it.
The worse a cluster cycle is, the easier it is to produce the red/white effect.
Has anyone else noticed something like this, or heard of it?
Thanks to all on this web site. There is comfort in knowing that I don't live in this hell alone.
Jim Ambrose