Posted by stevevr (208.136.227.16) on April 08, 2001 at 13:57:11:
We are working on a project for O.U.C.H. We have a very straight forward objective. We want to put information on the OUCH site that provides quality, practical information that can help the sufferer / supporter cope with the cluster experience.
Think of your experience with cluster headaches. Besides the pain ... what are the biggest challenges you face or have faced? Employment, disability, dealing with doctors, financial, insurance, strained relationships, depression ???? The list is as diverse as the individual.
We need your help. Can you identify with one or more of the above circumstances? Can you add to the list? If so, would you consider searching for some information that relates to finding solutions or assistance?
We want to create the most comprehensive resource page offered on the net for the cluster sufferer and supporter. To do that we need quality information.
Here is a search engine on the web that is extremely useful. www.google.com
For those of you that are interested .... check out the explanation of features at this site. You can get access to pdf files which uncover a good deal of information not found through normal search methods.
If you can spend a little time doing some research, and find some helpful information, please forward the link or resource to tireguy@kdsi.net
We are collecting information through June. After June, we will began reviewing all of the information to determine which material best meets our needs.
Thanks
stevevr