Posted by Bensue (63.11.65.172) on June 30, 2000 at 06:04:59:
In Reply to: misinformed your right posted by Paula on June 30, 2000 at 01:10:48:
any way we please.
Ted did not mention that we are working on several ways to inform the ignorant about CH.
If your have the time we could use you to help with this effort. We want to send newsletters, brochures, cover letters, etc. to the media to educate them about our orphan condition.
Donna suggests addressing the syndicated media. I think also useful would be to send information to local newspapers and talk shows, etc. If you have a favorite newspaper or broadcast medium let me know and I will add it to my mailing list.