Posted by Linda B on May 08, 1999 at 15:45:22:
In Reply to: Clusterhead Convention ? posted by Lee M. on May 08, 1999 at 03:07:45:
Common goal`s:
1# To meet one another.
2# To get the media to notice we do have a problem.
3# Make doctor`s aware that there is more suffer`s of CH and they think
4# Moral support from each other.
5# Way`s we might be able to tame the demon.
6# To be able to talk to people face to face about this disease.
7# To get Cluster Headache`s more study. So they might one day beable to stop the pain.
8# To get rid of all the myth`s on Cluster Headaches
Just a statement: We need to be heard. We are people in pain and know one know`s what their doing. Over 87% of doctor`s say women do not get CH. CH need`s have more testing. I am sure there or many other reason`s I am missing. This is only just a few. We would need backing from a large company. Their`s alot of us that can not affored to go to a meeting place, but it`s important that we all are there. This is why we need back up from a large or severel company`s. We all have story`s that need to be heard. This is a seriouse problem that need`s to be looked into. We all have good intention`s now we must act on them.
Please for give the spelling, but I hope you get the gest of what I`m trying to say.
Hug`s Linda B