Oh HAY-SOOS, Daisy and Donald  ...Anubis.....your one trick pony rants are becoming tiresome...what works for you works for you...GREAT....there is not a single  clusterhead who begrudges YOUR success. Some of us happen to think its a dangerous option for others...are we allowed an opinion?

Insulting Hoppy is silly/stupid.... as he is one of the most supportive on this site...and he only asked for clarification of YOUR  muddled ramble...can you report your findings without insult?...can you answer questions?...I'm still waiting...tho I completely understand that avoiding answers IS an answer in and of itself........

Jon

Quote:


Colin,

Thanks for the suggestions. Hmmm. As I mentioned, I did try the whole Batch D3 regimen, religiously, for over a month, without a cessation in my CHs. Yes, it's possible resuming it now, when I'm CH-free, might prolong the periods between taking a maintenance Vimovo. However, it's already at the point where I'm able to take 1 Vimovo every few days without any hint of shadows or CHs, so I don't really feel the need to load myself up with vitamin supplements for this reason.

I'm a little concerned about taking calcium supplements, as Batch himself suggested I avoid them, as I also get some arthritis pain in my right hand from time to time (especially when I've burned down the Vimovo). As for the magnesium, there is some Esomeprazole magnesium in the Vimovo, albeit only 20mg per tablet, so I might take another magnesium supplement. As for the fish oil, I still take some from time to time, just not every single day without fail, so I'm pretty sure I'm getting enough. One thing I have started to experiment with is substituting 3x100mg 5-HTP every day instead of a 10mg melatonin before bed each night. I may alternate between the 5-HTP and the melatonin, depending on how my sleep goes, but so far, the 5-HTP does help me get to sleep, but it also makes it easier to wake up in the morning, too. Since 5-HTP is a serotonin precursor, my serotonin levels are probably higher now, too.

You are right that the objective is to keep inflammation levels down, but that's exactly what the D3+Vimovo does extremely well. It's so effective at this point, I really don't see the need to supplement it any further.

I suggest you read what you have written and then edit it before posting it, then it wouldn't be  or as you put it "insulting you".

Hoppy

If you don't like being  on your snake oil remedy then tough titty's.

Hoppy

Hoppy wrote on Feb 15^th, 2016 at 6:12pm:


How mature. I guess my GP and neurologist, and years of research proving Naproxen is safer than Ibuprofen or Aspirin are ALL WRONG, and YOU are right. Thank you for your input, Dr. Hoppy.

I don't mind being questioned, I just resent being mindlessly attacked. Just because you're in love with your oxygen tank, it doesn't mean everybody else has to be.

Hey, Anubis, don't feel as though you've been singled out. Newbie-bashing is a bit of a sport around here, especially if your thoughts and ideas are a little new or innovative.

Just yesterday a first-time poster mentioned he was getting some relief using cypress oil and the first post to greet him was "Bwaaaaaaaaaaaa."

Only a fortnight back a brand-newbie replied to the Tryptomine DALT thread to say he was having a bit of success with it as an alternative therapy. He was immediately advised his post was difficult to read without para-breaks and when he bridled a little at the welcome the next post was, "Took [him] eight hundred days to make their first pissy post and prolly gonna wait eight hundred more to reply."

Haven't heard from either of them since and there's been so many more, including those whose 'stupid and dangerous' ideas are now mainstream CH therapies.

An interesting exercise is to click on someone's user-name to bring up their profile, scroll down, and you can click to see their last 40/80 posts. This will give you an idea about how they respond to others and how much they're here to help or otherwise.

Since putting my email address on the bottom of all my posts I've been contacted privately by four ClusterHeads and a Supporter who choose not to post here.

Two of them began posting but were pretty much driven away, two never even made a first post, and one didn't even join though we correspond regularly and she's thankful for my help.

This is an open forum which means everyone has the right to post their opinion or to howl down anyone with whom they disagree.

It's only airheads like myself who believe we're all here to help ClusterHeads and their Supporters deal with a horrible, horrible disease and to perhaps claim some of their life back.

Ah, well. Full steam ahead and damn the torpedoes,

Brian down under.

Quote:


Oh yeah? I'll see your scare-mongering, cover-my-ass warning label and raise you a wikipedia entry:

"(Naproxen) is the preferred NSAID for long-term use in people with a high risk of cardiovascular (for example, heart attacks or strokes) complications,[3]:665 due to its relatively low risk of causing such complications. Naproxen has an intermediate risk of causing stomach ulcers as compared with ibuprofen, which is low-risk, and indometacin, which is high-risk.[4] In order to reduce the risk of stomach ulceration, it is often combined with a proton-pump inhibitor (a medication that reduces the production of stomach acid) during long-term treatment, in those with pre-existing stomach ulcers, or a history of developing stomach ulcers while on NSAIDs.[2][3]:665,673"

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

That last sentence in the quote is exactly what Vimovo is. This article seems to be implying that you can even take Vimovo if you HAVE a history of stomach ulcers or bleeds, as the protein pump inhibitor reduces the production of stomach acid during the dose.

You don't seem to get it. What you quoted is full of 'May... May... May...'. The manufacturer of Vimovo is COVERING THEIR LEGAL ASS. They are warning the heck out of people, JUST IN CASE somebody dies who shouldn't have been taking it. Drinking too much water can kill you, too. The United States is so litigious, of COURSE they have a scare-mongering warning in the fine print. But the RESEARCH is what I'm reading, NOT the 'cover my ass' legalese, and the research says Naproxen is proven to be the safest NSAID and with a protein pump inhibitor, it's even safer for long-term use.

If you'd stop being so thick-headed and stubborn when faced with real information on Vimovo, you might just be able to put away the damned oxygen tank for good.

Quote:


Bully for you. Some of us want to be able to go out WITHOUT hauling around an oxygen tank. And better yet, not get any CHs in the first place.

anubis44 wrote on Feb 15^th, 2016 at 10:20pm:



  In your fervor to post you missed the part where I said I'm ten years pain free.

           Potter

Yep,  This sounds really familiar  !

I'll give ya all some mail !
What has transpired here is friggen disgusting !
Everyone needs to take a damn good look at themselves !
If everyone wants a forum,  only for there own views to be gospel and anyones comments that differ from there's are to be berated, ridiculed and personally attacked, Well, this forum would then become useless !! as it seems to be heading.
Everyone, as I see it, has a right to express views, experiences and tribulations, with regard to our affliction, I don't think any one person, regardless of length of time or shortness of time contributing here has any special right of passage !!
Its unfortunate that Anubis and hoppy got off to a wrong footing ! I know Hoppy and respect his input and contribution both here and on other places, I also think Anubis is genuine in his approach with using Vimovo and his willingness to document his experience with it, which is with doctors supervision.....
How about we accept people with different views or approaches, all contributions, whether they be ill informed, or taking a new tact, should be at least given a fair crack at it.
So maybe a chill pill is in order,  those opposing have made their views known, which should be respected as well  !
... But enough is enough  !
  geeez
C

AussieBrian wrote on Feb 15^th, 2016 at 9:38pm:


Brian,

Thank you very much for your supportive words.

After mulling things over a bit, I've come to some conclusions. First of all, although I don't like to make generalizations about people, I had always known that America is a very litigious country. Just driving down the I-81 to Atlanta to visit some relatives, I noticed that practically every billboard was a lawyer's advertisement to help you sue the crap out of somebody for something. In Canada (where I live), Australia and the U.K., such 'legal cases' would often just be thrown out of court as baseless. Based on some of the responses to D3+Vimovo, I'm starting to realize just how confused, frightened, and frankly, paranoid, some Americans can be. Apparently, it's cultural, so I don't blame anybody personally. Apparently, nobody can trust anybody or anything in that country, and so, even if the overwhelming consensus of medical research has demonstrated that Naproxen is safer than aspirin or Advil, and Vimovo, being a Naproxen+protein pump inhibitor, is even safe enough for people with a history of stomach ulcers to use long-term, that's still not going to be good enough. The mistrust in these people is epic.

So, in the spirit of goodwill, in spite of some hostile and bitter replies, because I want CH'ers to try what has worked for me, (especially chronic CH'ers!) I'm going to recap, since I know some people might only read the latest posts in an active thread.

I'm going to reiterate that I, a chronic CH'er, still haven't had a single CH since I was 18 days on the D3+max dose Vimovo back on Nov. 2nd, 2015. (Yes, for that initial loading dose period, you will still need your usual abortive in the event you still get a CH, until they've stopped altogether). Not ONE SINGLE CH. Not even a little, tiny one. Only the vaguest hint of a shadow whenever I burned down the Vimovo a little too much.

I'm going to reiterate that this is not an abortive treatment. I don't take D3+Vimovo only when I sense an actual CH coming on. This is a preventative treatment. That means that once you have stopped your CHs with daily D3+Vimovo doses, you should not get any more CHs. Since I was chronic at the time I started this regimen, I don't know what the implications are for an episodic sufferer. It may be that you can break a cycle with this regimen, and not need to take the Vimovo again unless/until you sense another cycle coming on. I don't know. My belief is that you may be able to avoid a cycle entirely if you are able to resume the D3+Vimovo regimen at the earliest sensation of a shadow.

I'm going to reiterate that this treatment dropped my inflammation levels (meaning prostaglandin levels) down to the point that I have been able to cut down the Vimovo to a single 500/20mg tablet every few days (while still taking one and sometimes two 10,000iu D3 daily). At this point, I'm basing it on how I feel, as I've become quite attuned to my inflammation levels by now. For example, if I start to get arthritic soreness in my right hand joints, I know my inflammation levels in general are rising, and it's time for another Vimovo. So far, once I got past the 3 week loading dose period, I have been able to take no more than 1 Vimovo/day. I haven't had to take 2 in a day.

I'm going to reiterate that Naproxen, the main ingredient in Vimovo, is listed in wikipedia (wikipedia, for crying out loud!) as "the preferred NSAID for long-term use in people with a high risk of cardiovascular (for example, heart attacks or strokes) complications,[3]:665 due to its relatively low risk of causing such complications," and "In order to reduce the risk of stomach ulceration, it is often combined with a proton-pump inhibitor (a medication that reduces the production of stomach acid) during long-term treatment, in those with pre-existing stomach ulcers, or a history of developing stomach ulcers while on NSAIDs.[2][3]:665,673" I'm going to reiterate that Vimovo is just such a Naproxen/protein pump inhibitor-class of drug.

Best wishes to all, even to you, Hoppy & Potter!

All,

If we can't show each other a bit of respect and hold a reasoned debate (on any proposed treatment), then how in God's name can we expect the rest of the population to take us seriously ??????

P.