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Ten years pain free? Where did you say that in this thread? Please elaborate. Or are you just able to abort quickly? There's a difference. I'm not even starting to get CHs anymore. That's what pain-free means. No CHs in the first place. The way you talk up Oxygen, it sounded like you're still getting them, and just aborting them. That's not pain-free.

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Hoppy wrote on Feb 16^th, 2016 at 7:00pm:


Curmudgeon makes me feel like I'm part of a Dickens novel.

     Potter

Hoppy wrote on Feb 16^th, 2016 at 8:34pm:


  Krook.

     Potter

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Potter, I had understood your use of the word 'bust' to mean that you abort CHs with something like Oxygen at the earliest sign of one. Is this incorrect? Are you saying you have an effective preventative treatment?

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I'm glad you feel comfortably well-characterized in such a literary setting such as that.

  And I did take a poll on a super dooper secret cluster headache website.

one member berated me for doubting your analytical findings.

one member found some relief from migraines by using naproxen.

  ninety eight think yer full of yourself.

        Potter

Quote:

Aussie Brian wrote, You could start the same poll here where things aren't quite so secret.


This thread has been viewed 1695 times with 91 replies! I would like to hear from folk that are trying your remedy and their results?

Now viewed 2384 times and still no takers!

Hoppy

So much for my suggesting that everyone shows a bit of respect for each other. It seems that was a little naive of me.

It's time the Moderators step in and put a stop to this thread. What happened to the principle of " challenge the idea, don't attack the person".

That certainly hasn't happened in this case and I must add,it's not the first time, involving some of the same people.

Colin (Blacklab), if you're still looking in, reconsider. I have always valued your input and I think it a great waste for you to leave this site for the failings of others.

Peter.

thierry wrote on Feb 18^th, 2016 at 4:33am:


Yep I invested all the money I took out of my microsoft and fb stock and bought into chdotcom a site that costs DJ money to keep up.
  Maybe you should ask him yourself.

               Potter

Hi Anubis

If you get the impression you are pissing against the wind on here, you would be correct. But the wind bags are few, however bigoted the nay sayers, you were right to put up your solution, it would have mean for you not to. For you to be attacked for doing so is not mean just plain crass.

This site may have helped save my life. I was in a great deal of difficulty and some of the advice was spot on , though some was less than helpful.

I dip in from time to time to see if things have moved on, they haven't. CH is incurable! no one knows what causes it! it is the worst pain known to man! and GP's don't know what they are talking about! neuros aren't much better! but if you find a headache specialist who tell you what you want to hear and it conforms with the views of some of eminences on  here you are in safe hands!

Lets cut some of the crap; CH does not have a single cause and there is no single panacea. NSAIDS can and do help.

My problem was a multi headache syndrome which culminated, at its worst, with CH. I had got up to a 10 and it kept on going.

I now know what causes my HA's, there is a cure but its not one I need to opt for at the moment (transected / cauterised nerves – top of neck 20mm into skull, 20mm to left from centre back).

I now juggle with amitriptyline (former depression drug) used as a nerve block, normally 40mg once per day plus NSAID  (indomethacin 25mg – 150mg per day with gut protector)). And I can control most headaches, Downside Indo gives me a full HA (both sides at back) Amitript not good with booze.

Personal body chemistry and specific impaction of nerve(s) plus other biological factors will determine what works for the individual. The “experts” are still groping in the dark with primary (don't know what causes it) and secondary (THINK they know what causes it). The truth is the current classifications of HA's are holding back the science. There is too much width in some of the diagnoses that means an individuals HA could have 2,3, 4 more causes and diagnoses. Internal blood pressure vs atmospheric pressure seems an obvious antagonist by either a blood vessel  growing through increased pressure and pressing on a nerve or the same blood vessel growing through drop in atmospheric pressure resulting in the same pressure on a nerve.

Your fix works for you and therefore may well work for others therefore don't be put off from getting your fix out their to people who may benefit.  Let the D3ers believe what they want to (D3 is a anti-inflammatory but also helps in the reduction of BP and assists with elasticity of blood vessels – studies show too much can be as harmful as too little – the experts can't yet agree on where too much / little lies). Oxygen also works on modifying the diameter of blood vessels.

There are some on here that hold that CH is a badge of honour, then there are some of us who wish not to have it and encourage others with our stories of success.

I find it strange how people come here and insist that some of us are idiots, because "they have the cure for their type of headache."  That reminds of the surgeon who said that he got cluster headaches when he bent over too long during a long surgery, and had to take a nap to end it.

I was chronic for more than 14 years with actual CH's. If a person actually has CH's, they will fully understand when I say that I was exploring the dark and scary places in the deepest recesses of my mind. Because of the collective information on THIS site, I have not had a real CH in more than two years now. Yes, I get some really minor twinges/warnings, but......

THERE IS NO WAY that I can begin to explain what it is like to get my life back after 14 years of agony beyond my wildest imagination. Yes, really - it is that amazing. The MOST important part of my post is: The people who were the hardest on me, were the MOST effective in making me explore the options.

Pissing in the wind? Bigoted naysayers?  If you get your delicate feelings hurt on the internet, grow up, grow a pair and get over it. Been there and done that! I got all "butt chapped" a couple of times and deleted myself - before I grew up a little.

If a person spends the time to research the information available here, they will find a way to better manage their CH's.

I repeat for the folks looking for help: THIS IS THE PLACE.

Read, look, research and listen. If you get your feelings hurt, decide if CH's or your feelings are more important - before you run away crying.

People who care very deeply about the subject tend to be the most assertive and protective of this site. They worry about new people getting sucked into false narratives and suffering longer...............

Then there is the Fluffy Bunny crowd who doesn't want to hurt anyone's feelings, under any circumstances.

Marc