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It's been almost 10 years since I posted the above and I've been a very infrequent visitor here but decided to share my past 10 years experience anyway:

I'm now almost 64 and have suffered from clusters since I was a kid in high school.

the best thing I discovered before this was the imigran/imitrex injection in the mid 90's so I was at least able to kill a CH easily but I still went for 4-8 weeks per year of pain.

Since I discovered that a colonic could stop a cycle in it's tracks I have been taking that course of action whenever a cycle starts. I usually start off with a few minor HA's a few weeks before a cycle starts and they increase in intensity until I get the 2am wake up and reach for the trex injection. (I still have some long expired ones that still work!)

so every year or so when the cycle begins I go see my colonic therapist. Each time its more or less the same experience. The water goes in until it reaches my left hand side then it gets uncomfortable as its always blocked. The therapist intensely massages my left colon area and eventually the blockage clears. Then the next blockage is always in my right hand side and the same massage process until after about 30 mins the colon is empty of sh.t.

The therapist likens my colon to a twisted garden hose with kinks in it. Water (sh.t) still flows but slowly past the kink. When the kink is freed water flows properly. It seems that faecal matter build up that stays in the colon too long (24 hours is normal from mouth to anus) can cause you to feel bad in various ways and I believe my CH is due to this.

That night I usually struggle to sleep and feel quite hyper, but the headaches are gone for another year or so.

Anyway its not a full "cure" as such but is a drug free treatment that works well for me and keeps me CH free for the past 10 years. My colon seems to have a tendency to twist as time goes by and apparently its quite a common thing.

If you decide to try it ,go to a properly qualified therapist for a safe and easy result.

         LMAO @ you Bob.

G'day, JohnM, and I reckon it's just beaut you've something that works for you and have taken the time to pass it on in the hope it might help others.

I know a few people who may well benefit from such a treatment, if not for CH then just to improve their outlook on life in general.

Cheers and beers,

Brian down under.

Which neatly proves the point.

                  Brian.

This town needs an enema 


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JohnM wrote on Dec 15^th, 2015 at 12:10pm:


Oxygen is cheap.

  Potter

JohnM wrote on Dec 15^th, 2015 at 12:40pm:


It's your Hypothalamus fer crissakes and unless you got your head up your ass a colonic ain't gonna do shit.
     Unless ya like that sort of thing.
Blowin smoke up our ass ain't helpin

            Potter

Were you diagnosed by Dr Elliot Shevel or self diagnosed?

         Potter

JohnM wrote on Dec 15^th, 2015 at 1:40pm:


  I simply asked a valid question.

     Potter

This ain't your first rodeo posting such drivel and you knew what kind of shit storm touting colonics for clusters was gonna bring so why bother?

We have Many prevents that are showing great results in hundreds if not thousands of cases. The D3 regimine, mushrooms,seeds, lsd, and 5MEO Dalt.

You're a onesie.

                               Potter

Yes my advice may be counter intuitive but..
Over the years I have tried just about every treatment recommended by doctors and neurologists. Lithium to Imigran and loads more in between. LSD and Magic Mushrooms I wouldn't know where to begin to find them where I live so never tried. Chugging water done that, high caffeine drinks done that, imitrex tip done that with fair results. Followed this site for hope with limited success.

I came to my own conclusion that the CH and the gut were linked. Food and drink triggers have long been linked.

So I tried detox diets, juicing etc and had some success breaking a CH cycle with them for a couple of years then that became less affective. Then in one cycle that was debilitating me my daughter suggested a colonic. I've read tons of stuff debunking it and tons of stuff extolling the virtues of it. Then spoke to a practitioner who explained that she trained in the process after her mother died a nasty death from colon cancer and has dedicated her life to helping in its prevention. She told me that a few of her patients suffer from what she called chronic headaches, migraines etc and it had helped many of them.


So I gave it a try. Nothing bad happened to me but I watched as firstly lots of soft stuff came out, the nothing, then after massage began to see loads of hard balls come out then eventually free flowing matter until nothing but water.


From the next day no more CH for over a year. Now I Repeat as soon as my cycle starts.


The Hypothalmus controls the colon so they are linked somehow.


The fact that the world experts on CH haven't made the link is something I can't explain. Maybe they need to think outside the box?


So all I'm trying to share is that as a bona fide long time CH sufferer I found something that finally works that does not involve panicking to ensure I have enough Imigran injections, or trying to buy illegal drugs, brain implants, oxygen tanks and the logistics of using them.


I understand your concern about giving forum users false hope but I do say give it a try. It's not a big deal if done properly by a properly trained and qualified therapist, and don't confuse it with an emema! That's like comparing aspirin with imitrex.

Well spoken Brian.

I have nothing to gain expressing my experience. Just that after 10 years of doing this treatment with 100% success I thought it was my moral obligation to share with others. Here's hoping it helps another sufferer.

Hi all,     This is only my opinion....
       I've been on the D3 for about 2 years, it didn't effectively work for me till 15 months ago. Now I'm not 100 % pain free, but Gee, it makes a big difference as to the pain level now than before.
Well, every thing turned to shite 6 weeks ago, a full on cycle came a knocking ! geez I forgot what it was like !
I'm still getting Hit, but it seems to be easing, it has now given me the time to sit back and evaluate it, the cycle hasn't really gone past a kip 5-6, but when you haven't had much more than kip 2's for the last 15 months, its a damn big deal !
So what was the reason ? why did I fall off the wagon ?  I fiddled with the Benadryl, it helped when the poolen was thick, but I still pondered over why I fell into a full on cycle of 3-5 hits a day..........?
Turns out, I have an infection in or around my GI tract,
In fact its been damn uncomfortable digesting food, holding it in, bloody uncomfortable.  But I didn't connect the two, because even a kip 5-6 over rides a continual case of a stomach upset
My point here, is, my diet, and a subsequent yeast infection seems to have kicked off my first cycle in 15 months !  As Batch has stated, 90 % of our immune system is in our G. I. tract, get that out of balance and its gunna kick you somewhere, some how ! My love for all things chocolate, and sugary food, and white bread, sent every thing into a huge spin !    Now like clusters, some people could live on that diet and not effect them in the slightest,  hell, some people don't have clusters !  but the point being, it sure as hell dealt me with a diet reality check,  and that's a fact !
would colonics help keep you pain free from clusters ?
I don't know !
Did an excessive sugar and a bread yeasty diet effect me in such a way that caused the inflammation in my G.I tract that caused my first cycle in 15 months ?   well, 5 days off the " good food" and eating properly, including the helpful gut food and probiotics, and I'm on the improve, as well as an easing of my cycle. 
Geez, I dunno,  all this new information to ingest, what with the Vit D3 regime, healthy stomach G.I tract talk,  Its all very new for this new kid on the block !
But If I go Pain free on my new " healthier " diet, along with the Vit D3 regime,   Then let no man tell me otherwise, that I've found my preventative cure !
 
That's just my view

regards to all
colin